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Unpredictable flares in JIA

Sometimes, young people with JIA can go for months or even years without their disease bothering them, but then it comes back. This is called a flare-up or flare. Most young people have ups and downs in their symptoms for many years, depending on what type of JIA they have. It is important to remember that flare-ups just happen and can’t be prevented. Usually, the cause of the flare is unknown. It can be upsetting to see such changes when it seemed like the JIA had improved or disappeared. Do not give up hope. There are many excellent treatments available to help get the inflammation back under control.

Growth problems in JIA

However, in some cases, the inflammation can cause the growth plate to fuse or close earlier than it was supposed to. This can cause the affected side to be smaller or shorter than the unaffected side. Jaw inflammation can result in a smaller or misshaped chin. Knee inflammation can lead to one leg being longer than the other. Occasionally, if the JIA is severe, your overall growth (height) might be slow. Your growth will usually improve once your inflammation settles.

Some of the medications you take to manage your JIA, such as corticosteroids (prednisone), may also slow your growth. Keeping JIA in good control with medications is the best way to avoid these types of growth problems. Your health care team will pay careful attention to your growth.

Joint contractures in JIA

Inflammation causes pressure and sometimes pain in and around the joint. Sometimes, young people with JIA will keep the inflamed joint in the most comfortable position, which is usually bent. If a joint stays bent for too long,

both the muscles and the structures that attach muscles to bones, called tendons, will shorten and not grow properly. As a result, the joint becomes stuck in a bent position. This is called a joint contracture.

In young people, unlike adults, cartilage and bone can still grow. This allows for healing and repair of joint damage. Joint tightness can be reduced with regular stretching exercises and splinting. A splint is a brace that helps to keep a joint (like your knee or your wrist) in one position.

Sometimes an injection of medicine into the joint is very helpful. It can rapidly decrease the inflammation in the joint so that you can do the stretching exercises more effectively.

Muscle weakness and muscle loss in JIA

Muscle weakness and muscle loss around an inflamed joint are common in people with JIA. When a joint is swollen, stiff, and painful to move, you will naturally want to reduce your activities. However, doing this can make your muscles weaker. When you don’t use your muscles regularly, your muscles will become smaller.

Exercising​ helps prevent muscle weakness or even muscle loss. Using a brace or splint might not help, because they prevent your muscles from working properly. Talk to your doctor or physiotherapist about how to improve your muscle strength safely.

Osteoporosis in JIA

Osteoporosis is when the bones become thin and weak. Bones with osteoporosis are easy to fracture. Osteoporosis can develop in young people with JIA for many reasons. These include not staying active and not getting enough calcium, both of which are needed to help make bones strong and healthy. Taking certain medications like corticosteroids for a long time may also lead to osteoporosis. Prolonged joint inflammation or arthritis can also lead to osteoporosis.

You can help prevent osteoporosis by staying active. Your medical team may also ask you to take calcium and vitamin D supplements. You might need special bone density tests once in a while to check for osteoporosis. You will learn more about this in “Bone scans and bone density and JIA.”

Eye problems in JIA

In addition to joint problems, JIA may cause problems with your eyes including uveitis, glaucoma, or cataracts. All young people with JIA should get their eyes checked regularly by an ophthalmologist or optometrist. An ophthalmologist is a medical doctor with special training in eye care and treatment. An optometrist is a health care professional who can diagnose eye problems. Your rheumatology team will let you know how often you need to see your eye doctor.

For more detailed information about uveitis, glaucoma, and cataracts, see the next page in this section, entitled “Eye problems and JIA.”