Complications of JIA

Unpredictable flares in JIA

Sometimes, young people with JIA can go for months or even years without their disease bothering them, but then it comes back. This is called a flare-up or flare. Most young people have ups and downs in their symptoms for many years, depending on what type of JIA they have. It is important to remember that flare-ups just happen and can’t be prevented. Usually, the cause of the flare is unknown. It can be upsetting to see such changes when it seemed like the JIA had improved or disappeared. Do not give up hope. There are many excellent treatments available to help get the inflammation back under control.

Growth problems in JIA

These girls are both 14 years of age. The one on the right is at the normal height for her age. Arthritis inflammation can affect how your body grows. Some medications you take to manage your arthritis can also affect growth.
These girls are both 14 years of age. The one on the right is at the normal height for her age. Arthritis inflammation can affect how your body grows. Some medications you take to manage your arthritis can also affect growth.If you are still growing, you have growth plates at the end of your bones. As part of normal development, these growth plates fuse or close when you have reached your adult height. The inflammation of JIA can affect how your body grows. Inflammation causes an increase in blood flow to the growth plates, which leads to more rapid growth of the bones in the affected joints. Therefore, the side affected by arthritis may be larger or longer than the unaffected side.

However, in some cases, the inflammation can cause the growth plate to fuse or close earlier than it was supposed to. This can cause the affected side to be smaller or shorter than the unaffected side. Jaw inflammation can result in a smaller or misshaped chin. Knee inflammation can lead to one leg being longer than the other. Occasionally, if the JIA is severe, your overall growth (height) might be slow. Your growth will usually improve once your inflammation settles.

Some of the medications you take to manage your JIA, such as corticosteroids (prednisone), may also slow your growth. Keeping JIA in good control with medications is the best way to avoid these types of growth problems. Your health care team will pay careful attention to your growth.

Joint contractures in JIA

Inflammation causes pressure and sometimes pain in and around the joint. Sometimes, young people with JIA will keep the inflamed joint in the most comfortable position, which is usually bent. If a joint stays bent for too long,

both the muscles and the structures that attach muscles to bones, called tendons, will shorten and not grow properly. As a result, the joint becomes stuck in a bent position. This is called a joint contracture.

In young people, unlike adults, cartilage and bone can still grow. This allows for healing and repair of joint damage. Joint tightness can be reduced with regular stretching exercises and splinting. A splint is a brace that helps to keep a joint (like your knee or your wrist) in one position.

Sometimes an injection of medicine into the joint is very helpful. It can rapidly decrease the inflammation in the joint so that you can do the stretching exercises more effectively.

Muscle weakness and muscle loss in JIA

Muscle weakness and muscle loss around an inflamed joint are common in people with JIA. When a joint is swollen,
stiff, and painful to move, you will naturally want to reduce your activities. However, doing this can make your muscles weaker. When you don’t use your muscles regularly, your muscles will become smaller.

Exercising​ helps prevent muscle weakness or even muscle loss. Using a brace or splint might not help, because they prevent your muscles from working properly. Talk to your doctor or physiotherapist about how to improve your muscle strength safely.

Osteoporosis in JIA

Osteoporosis is when the bones become thin and weak. Bones with osteoporosis are easy to fracture. Osteoporosis can develop in young people with JIA for many reasons. These include not staying active and not getting enough calcium, both of which are needed to help make bones strong and healthy. Taking certain medications like corticosteroids for a long time may also lead to osteoporosis. Prolonged joint inflammation or arthritis can also lead to osteoporosis.

You can help prevent osteoporosis by staying active. Your medical team may also ask you to take calcium and vitamin D supplements. You might need special bone density tests once in a while to check for osteoporosis. You will learn more about this in “Bone scans and bone density and JIA.”

Eye problems in JIA

In addition to joint problems, JIA may cause problems with your eyes including uveitis, glaucoma, or cataracts. All young people with JIA should get their eyes checked regularly by an ophthalmologist or optometrist. An ophthalmologist is a medical doctor with special training in eye care and treatment. An optometrist is a health care professional who can diagnose eye problems. Your rheumatology team will let you know how often you need to see your eye doctor.

For more detailed information about uveitis, glaucoma, and cataracts, see the next page in this section, entitled “Eye problems and JIA.”

Welcome to the Taking Charge: Managing JIA Online Program! In this section you will learn what to expect in the program, how to get started and how to set goals to better manage JIA.

JIA stands for juvenile idiopathic arthritis. Find out what causes JIA, the different types of JIA and how it will affect you now and in the future.

Diagnosing JIA may be difficult as joint pain and swelling may be a part of many different illnesses. Diagnosis of JIA typically includes a physical exam, blood tests and imaging studies.

Pain, stiffness, and tiredness or fatigue, are common symptoms of JIA. These symptoms can lead to difficulties with participating in school and sports activities, and enjoying time with your friends. Learn about pain, fatigue, and stiffness, how to manage symptoms and how these symptoms can cause stress.

There are several strategies you can use to help you cope with pain, stress, and sleep problems. These include relaxation, distraction, and managing your thoughts. In this section, learn more about how each of these strategies work.

When you know about your medications, you can talk to your doctor about them and make good choices for yourself. Find out about the different types of JIA medications, how they work, common side effects, and the importance of talking to your doctor about your medication plan.

Did you know that there are many other therapies that you can use to manage JIA symptoms? They can help to prevent complications so that you can do all the things you want to do. In this section, learn more about physical, occupational, and psychological therapies; maintaining healthy nutrition; surgical options for JIA, and more.

Your role in making decisions about your treatment plan is very important. Your health-care team and other members of your support system are available to help you make these decisions. In turn, they can help you to manage your JIA.

Whether you have JIA or not, you need to maintain a healthy lifestyle. Find out how to stay healthy and active, learn about puberty and relationships, healthy body image, and making healthy lifestyle choices.

Sometime between the ages of 18 to 22, you most likely will transition from your pediatric rheumatologist to the adult health care setting. At that time, there are a number of things you, your family, and your health-care team can do to help make this change go smoothly.