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JIA Resources

In addition to the information in this website, there are lots of other resources that can help you learn to manage JIA.

Booklets

Finding out your child has arthritis

Living with arthritis: A guide for young adults

The worst pain in the world

 

Information sheets

Condition Specific/ General Management

Medicines

 

Websites

Cassie + Friends: A Society for Children Affected by Juvenile Arthritis and Other Rheumatic Diseases

Kids Get Arthritis Too

Versus Arthritis UK

Arthritis and Osteoporosis New South Wales: Kids and Arthritis

Pediatric Rheumatology International Trials Organisation (PRINTO)

painHealth – Pain Conditions

Teen Health Source (Canada)

Arthritis & Osteoporosis WA

Arthritis Australia

Musculoskeletal Australia

Children’s Arthritis Research Institute (CARI)

Beyond Blue

5 Ways to Wellbeing

Live Lighter

Nutrition Australia

Helpful tips for assessing the quality of information on the internet

When you are looking for information, the internet may be one of the first places you turn to. The internet is the top source of information for teenagers and many adults. There are many websites about JIA, however, the quality of information on these sites varies greatly. It is important that you and your teenager talk to your teenager’s doctor to help you understand the information you find on these sites. Here are some tips to help you determine if the site is of good quality. Remember SCREEN!

S = Source Is the sponsor of the site credible? Check out their credentials. One way to do this, though it’s not 100% accurate, is by looking at the domain. Is the site: government (.gov), educational (.edu), or nonprofit organizations (.org)? Is the site current? What is the last date it was updated?
C = Conflict of interest or bias Is the site selling or promoting a product or service?
R = editorial Review process Is there an editorial process or seal of approval?
E = Evidence-based Are the claims based on scientific research and is there documentation?
E = Extreme claims Does the site claim “miracles,” “amazing results,” or ”earthshaking breakthroughs?” Any claim that a treatment works for dozens of different problems, or has a 95% or 99% improvement rate, is likely to be misleading and driven by profit.
N = Not related Is the information unrelated to or different from what you were told by your health-care provider?

Welcome to the Taking Charge: Managing JIA Online Program! In this section you will learn what to expect in the program, how to get started and how to set goals to better manage JIA.

JIA stands for juvenile idiopathic arthritis. Find out what causes JIA, the different types of JIA and how it will affect you now and in the future.

Diagnosing JIA may be difficult as joint pain and swelling may be a part of many different illnesses. Diagnosis of JIA typically includes a physical exam, blood tests and imaging studies.

Pain, stiffness, and tiredness or fatigue, are common symptoms of JIA. These symptoms can lead to difficulties with participating in school and sports activities, and enjoying time with your friends. Learn about pain, fatigue, and stiffness, how to manage symptoms and how these symptoms can cause stress.

There are several strategies you can use to help you cope with pain, stress, and sleep problems. These include relaxation, distraction, and managing your thoughts. In this section, learn more about how each of these strategies work.

When you know about your medications, you can talk to your doctor about them and make good choices for yourself. Find out about the different types of JIA medications, how they work, common side effects, and the importance of talking to your doctor about your medication plan.

Did you know that there are many other therapies that you can use to manage JIA symptoms? They can help to prevent complications so that you can do all the things you want to do. In this section, learn more about physical, occupational, and psychological therapies; maintaining healthy nutrition; surgical options for JIA, and more.

Your role in making decisions about your treatment plan is very important. Your health-care team and other members of your support system are available to help you make these decisions. In turn, they can help you to manage your JIA.

Whether you have JIA or not, you need to maintain a healthy lifestyle. Find out how to stay healthy and active, learn about puberty and relationships, healthy body image, and making healthy lifestyle choices.

Sometime between the ages of 18 to 22, you most likely will transition from your pediatric rheumatologist to the adult health care setting. At that time, there are a number of things you, your family, and your health-care team can do to help make this change go smoothly.