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In addition to the information in this website, there are lots of other resources that can help you learn to manage JIA.

Booklets

Finding out your child has arthritis

Living with arthritis: A guide for young adults

The worst pain in the world

 

Information sheets

Condition Specific/ General Management

Medicines

 

Websites

Cassie + Friends: A Society for Children Affected by Juvenile Arthritis and Other Rheumatic Diseases

Kids Get Arthritis Too

Versus Arthritis UK

Arthritis and Osteoporosis New South Wales: Kids and Arthritis

Pediatric Rheumatology International Trials Organisation (PRINTO)

painHealth – Pain Conditions

Teen Health Source (Canada)

Arthritis & Osteoporosis WA

Arthritis Australia

Musculoskeletal Australia

Children’s Arthritis Research Institute (CARI)

Beyond Blue

5 Ways to Wellbeing

Live Lighter

Nutrition Australia

Helpful tips for assessing the quality of information on the internet

When you are looking for information, the internet may be one of the first places you turn to. The internet is the top source of information for teenagers and many adults. There are many websites about JIA, however, the quality of information on these sites varies greatly. It is important that you and your teenager talk to your teenager’s doctor to help you understand the information you find on these sites. Here are some tips to help you determine if the site is of good quality. Remember SCREEN!

S = Source Is the sponsor of the site credible? Check out their credentials. One way to do this, though it’s not 100% accurate, is by looking at the domain. Is the site: government (.gov), educational (.edu), or nonprofit organizations (.org)? Is the site current? What is the last date it was updated?
C = Conflict of interest or bias Is the site selling or promoting a product or service?
R = editorial Review process Is there an editorial process or seal of approval?
E = Evidence-based Are the claims based on scientific research and is there documentation?
E = Extreme claims Does the site claim “miracles,” “amazing results,” or ”earthshaking breakthroughs?” Any claim that a treatment works for dozens of different problems, or has a 95% or 99% improvement rate, is likely to be misleading and driven by profit.
N = Not related Is the information unrelated to or different from what you were told by your health-care provider?

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