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SKU: 12300-100-MY-BRAVE-FACE Categories:

My Brave Face

My Brave Face is a book of love, inspiration, history and comedy.

This real-life recount tells the story of Stephen, a sufferer of the rare and incurable bone disease, Osteogenesis Imperfecta.

Stephen had a little body but he had a huge heart.

He balanced his adversities with wisdom, courage and humour. He provided insight, compassion and encouragement to all who met him.

Stephen was my son, but most of all my best teacher. He taught me what real love is. He opened my eyes to the true values of life and showed me what really matters.

“When you go into the garden, you will see a lot of plants. There will be one flower of the brightest colour that stands out amongst the garden.”

That would be Stephen – and this is his story.

20 in stock


Stephen was just eight years old when his mum stopped recording his broken bones. At three hundred, the pages were filling up too fast.

Both Heather and her late son Stephen were born with the rare and incurable bone disease Osteogenesis Imperfecta, otherwise known as Brittle bone disease.

Affecting the body’s production of collagen, Brittle bone disease makes bones soft and bendy like plasticine, but at the same time, they can also shatter like glass with just the lightest touch.

Heather was born with what she says is a mild form of the disease. While this meant pain-free times playing skip rope and walking three miles to school, it would inevitably end in broken collar bones, ribs and even legs one after the other.

Years later, her late son Stephen would be born with a very severe form of the disease, breaking over 300 bones by just his eighth birthday.

Limited copies of Heather’s inspirational book ‘My Brave Face are available for $30 (includes postage).

Additional copies (both Kindle and paperback) can be ordered online at amazon.com.au and other online book stores.


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