You may feel a range of emotions after being diagnosed with JIA. Discover some strategies to help you cope with JIA.
• It is common to feel alone after a JIA diagnosis, but many young people have JIA just like you.
• You may feel a mix of emotions after being diagnosed with JIA. Even after learning to cope with JIA, there may be times when you have these same feelings again.
• It’s healthy to talk about your feelings with a person you trust.
How did you feel when you first learned that you had JIA? Many young people and their families go through a period at first when they feel sad. Did you feel this way? Were you shocked? Did you try to deny that you had JIA? Did you feel worried and angry? Did you feel like you somehow caused the JIA? Many people with JIA feel this way.
Over time, you will learn ways to cope and get on with life. However, there may be times when you have these same feelings again. This is most likely to happen when you are having a flare.
Do you ever feel like you are the only one with JIA? This is a common feeling. However, many young people have JIA just like you.
Here are a few ways to help you cope with JIA. You can add these to your list of coping strategies.
Young people with JIA often worry about the future.
It’s normal to be afraid of new experiences. Imagine moving to a new home. At first you wonder if you’ll make new friends, or adjust to a new school. Eventually you get used to your new home. In the same way, you’ll learn to feel more “at home” with JIA.
One way to control your fears of JIA is to find out more about it. You will learn lots about JIA in this program. You can also find out information by asking your doctor or other members of the health-care team.
Here are some questions you can ask:
You can also read about JIA through books or online. Be careful with Internet sites though, as not all of them provide accurate information. There is a list of reliable websites and books you can read in the Resources section.
Try contacting local and national organisations involved in JIA, such as Arthritis & Osteoporosis WA www.arthritiswa.org.au. By educating yourself, you can take an active role in managing your health.
Focus on all the things that you can do. This is a healthy thinking habit and can help you live your life to its fullest.
On the other hand, focusing on all the things that you cannot do because of JIA is unhelpful and makes it harder for you to do the things you want to. It can leave you feeling down. It can make you pull back from social and other fun activities.
Learn how hard you can push yourself and how far your body can go without worsening of your symptoms. Knowing the patterns of JIA will help you recognise your limits. For example, maybe you get tired in the late afternoon and need a rest after school. Eventually you will become familiar with your body’s needs and will know what you should or should not do. Or decide to do activities knowing that your symptoms may increase; however, this may be fine if it is an activity that is really important to you.
Find some activities that you are good at. Figure out what your strengths and talents are, like singing, dancing, acting, drawing or writing. Get involved in activities that help you explore your interests. Show off a little! When you focus on what you can do, you’ll have a better chance of staying positive. It will be easier to cope when things don’t go your way.
No matter what others may say, you’re going through a lot. You have the right to feel a mix of emotions – anger, sadness, fear, frustration and more. You’ll also experience a sense of triumph and accomplishment as you successfully manage JIA or achieve your personal goals. This is all normal because having JIA can be an emotional roller-coaster ride.
Just remember not to put your painful feelings aside. Try not to act as if your feelings don’t exist or bottle them up until you feel like you might explode. It’s healthy to talk about your feelings with a parent, sibling, friend, teacher, doctor, clergy member or anyone else you trust.
Welcome to the Taking Charge: Managing JIA Online Program! In this section you will learn what to expect in the program, how to get started and how to set goals to better manage JIA.
JIA stands for juvenile idiopathic arthritis. Find out what causes JIA, the different types of JIA and how it will affect you now and in the future.
Diagnosing JIA may be difficult as joint pain and swelling may be a part of many different illnesses. Diagnosis of JIA typically includes a physical exam, blood tests and imaging studies.
Pain, stiffness, and tiredness or fatigue, are common symptoms of JIA. These symptoms can lead to difficulties with participating in school and sports activities, and enjoying time with your friends. Learn about pain, fatigue, and stiffness, how to manage symptoms and how these symptoms can cause stress.
There are several strategies you can use to help you cope with pain, stress, and sleep problems. These include relaxation, distraction, and managing your thoughts. In this section, learn more about how each of these strategies work.
When you know about your medications, you can talk to your doctor about them and make good choices for yourself. Find out about the different types of JIA medications, how they work, common side effects, and the importance of talking to your doctor about your medication plan.
Did you know that there are many other therapies that you can use to manage JIA symptoms? They can help to prevent complications so that you can do all the things you want to do. In this section, learn more about physical, occupational, and psychological therapies; maintaining healthy nutrition; surgical options for JIA, and more.
Your role in making decisions about your treatment plan is very important. Your health-care team and other members of your support system are available to help you make these decisions. In turn, they can help you to manage your JIA.
Whether you have JIA or not, you need to maintain a healthy lifestyle. Find out how to stay healthy and active, learn about puberty and relationships, healthy body image, and making healthy lifestyle choices.
Sometime between the ages of 18 to 22, you most likely will transition from your pediatric rheumatologist to the adult health care setting. At that time, there are a number of things you, your family, and your health-care team can do to help make this change go smoothly.