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Your plan for managing symptoms

 

You may have had your pain, stiffness, and fatigue for a while now. It is important to realise that these symptoms are not going to disappear overnight.

However, as you learn more about ways to reduce your symptoms and practice these strategies, you are likely to see gradual improvements. You may start to feel better and more able to do things. Notice the small positive changes and congratulate yourself for them.

Monitoring your symptoms

Given that your symptoms may change over time, some young people find it helpful to use a diary or journal to track what works to help control their symptoms and to monitor changes. It is important to keep track of your energy level, your comfort and your activities. The journal just needs to be done for a short period of time so you can identify what helps to reduce your symptoms. This information can also help you talk to your doctor about your symptoms and to identify other ways to manage them.

Try keeping track of how well your medications, physical methods and coping strategies are working at managing your most bothersome symptoms.

Acknowledge the symptoms

It is important to recognise what causes your pain, stiffness and fatigue and how to cope with those symptoms before they get too difficult to handle. This means that as soon as you notice these symptoms, you need to put your plan to work. If you wait until your symptoms are really bad, these strategies might not work as well. Try to track what strategies have worked the best for your symptoms.

Plan the strategy

The strategy for dealing with your symptoms might vary depending on the situation that you are in. For example, you may need a different plan for school than you do for home. There is no correct way for dealing with your symptoms. Some strategies will be more effective than others. Discuss your options with your doctor and family and choose a plan that works best for you.

Carry out the plan

Once you have made a plan, follow it. It will take practice to learn how to make your plan effective. Your plan may include relaxing and doing stretches in bed before getting up, and then hopping into a hot shower every morning. Sticking to your plan will help reduce the stiffness and pain in your joints.

Evaluate and change the plan if needed

Managing your pain, fatigue and stiffness is a matter of figuring out what works and what doesn’t work for you. If you have tried a plan for a while and find that it isn’t working, think about changing that plan. Also, changes may need to be made to your plan as things change with your health or in your life. For example, you may need to change your plan when you graduate from high school and move on to university. It is important to discuss your plan and how you think you are doing with members of your health care team. They may be able to come up with some good suggestions for helpful plans.

Keep a positive attitude about your condition. Although it can be hard to always be positive, especially when you aren’t feeling well, staying positive will make you better able to adjust your plan and try out other strategies. Remember to praise yourself for your efforts. Pat yourself on the back for trying, even if you don’t think you’ve achieved the results you hoped for. It is possible that you may need to revise your goals, adjust your expectations or take things more slowly than you originally planned. Continuously reward yourself while you are working on reducing your symptoms. Staying positive can help keep you focused on your goals and can help you to become more confident about your ability to reach them!

Setting goals: Your plan for managing symptoms

In order to reduce your symptoms and increase your ability to do important things in your life, it is necessary to set goals.

What are your goals for managing your symptoms? Are your goals S.M.A.R.T. goals?

Remember that S.M.A.R.T. goals are:

• Specific
• Measurable
• Achievable
• Realistic
• Timely – can be achieved in a realistic time frame.

 

 

Welcome to the Taking Charge: Managing JIA Online Program! In this section you will learn what to expect in the program, how to get started and how to set goals to better manage JIA.

JIA stands for juvenile idiopathic arthritis. Find out what causes JIA, the different types of JIA and how it will affect you now and in the future.

Diagnosing JIA may be difficult as joint pain and swelling may be a part of many different illnesses. Diagnosis of JIA typically includes a physical exam, blood tests and imaging studies.

Pain, stiffness, and tiredness or fatigue, are common symptoms of JIA. These symptoms can lead to difficulties with participating in school and sports activities, and enjoying time with your friends. Learn about pain, fatigue, and stiffness, how to manage symptoms and how these symptoms can cause stress.

There are several strategies you can use to help you cope with pain, stress, and sleep problems. These include relaxation, distraction, and managing your thoughts. In this section, learn more about how each of these strategies work.

When you know about your medications, you can talk to your doctor about them and make good choices for yourself. Find out about the different types of JIA medications, how they work, common side effects, and the importance of talking to your doctor about your medication plan.

Did you know that there are many other therapies that you can use to manage JIA symptoms? They can help to prevent complications so that you can do all the things you want to do. In this section, learn more about physical, occupational, and psychological therapies; maintaining healthy nutrition; surgical options for JIA, and more.

Your role in making decisions about your treatment plan is very important. Your health-care team and other members of your support system are available to help you make these decisions. In turn, they can help you to manage your JIA.

Whether you have JIA or not, you need to maintain a healthy lifestyle. Find out how to stay healthy and active, learn about puberty and relationships, healthy body image, and making healthy lifestyle choices.

Sometime between the ages of 18 to 22, you most likely will transition from your pediatric rheumatologist to the adult health care setting. At that time, there are a number of things you, your family, and your health-care team can do to help make this change go smoothly.